Braxton’s Disney Adventure

Braxton, with Leopard syndrome, and his family had a fun-filled adventure visiting Walt Disney World and the beach while staying in the Space Cottage at the Sunshine Foundation Dream Village!

Thank you from Braxon’s Family

“We can’t express how much fun we had, how Braxton truly had his dream come true. We are extremely blessed to have been able to do this. We are so much closer as a family. We have this huge once-in-a-lifetime trip that we all are part of.” – Braxton’s mom, April

LEOPARD syndrome

The NIH describes LEOPARD syndrome as an inherited condition which causes abnormalities of the skin, heart, inner ears, and genitalia. LEOPARD is an acronym for the features of the condition, “(L)entigines – dark spots on the skin (E)lectrocardiographic conduction defects – abnormalities of the electrical activity of the heart (O)cular hypertelorism – widely spaced eyes (P)ulmonary stenosis – obstruction of the normal outflow of blood from the right ventricle of the heart (A)bnormalities of the genitalia (R)etarded (slowed) growth resulting in short stature (D)eafness.”