Leslie, with hypoplastic right heart syndrome, smiles from ear to ear meeting the Disney princesses. Read more…
Amaya’s Roller Coaster Adventure
Amaya, with Septo-optic dysplasia, took a dream trip to central Florida with her family to enjoy the big rides at the theme parks. There she conquered the roller coasters at both Disney World and Universal Studios.
Thank you from Amaya’s Family
“Amaya is grateful that she was able to take a trip to Florida and visit Disney World and Universal Studios for the first time. Amaya’s favorite ride in Disney World Animal Kingdom was Expedition Everest. Amaya enjoyed all of the superhero rides at Universal Studios Island of Adventure. At Universal Studios Florida, Amaya enjoyed collecting beads from the Mardi Gras parade. We are thankful to all the donors for making this trip possible.” Amaya’s mom, Jessica
Amaya’s Diagnosis
Amaya is diagnosed with Septo-optic dysplasia. The National Institute of Neurological Disorders and Stroke defines Septo-optic dysplasia (SOD) as a rare disorder of the development of the thin membrane between the two halves of the brain, the eyes, and the pituitary gland. Some symptoms of SOD may include loss of eyesight in one or both eyes, low muscle tone, or development delays from eyesight or neurologic problems.
Sponsors
We thank the 2022 RunWalkBark4Dreams, Mom’s Club of Bensalem, Valley Forge Mustang Club, and the Philadelphia Department of Public Health for answering Amaya’s dream!